RT Journal Article
SR Electronic
T1 The top research questions asked by people with lived depression experience in Alberta: a survey
JF CMAJ Open
JO CMAJ
FD Canadian Medical Association
SP E398
OP E405
DO 10.9778/cmajo.20180034
VO 6
IS 3
A1 Lorraine J. Breault
A1 Katherine Rittenbach
A1 Kelly Hartle
A1 Robbie Babins-Wagner
A1 Catherine de Beaudrap
A1 Yamile Jasaui
A1 Emily Ardell
A1 Scot E. Purdon
A1 Ashton Michael
A1 Ginger Sullivan
A1 Aakai’naimsskai’piiaakii Sharon Ryder Unger
A1 Lorin Vandall-Walker
A1 Brad Necyk
A1 Kiara Krawec
A1 Elizabeth Manafò
A1 Ping Mason-Lai
YR 2018
UL http://www.cmajopen.ca/content/6/3/E398.abstract
AB Background: To support patient-oriented setting of priorities for depression research in Alberta, the Patient Engagement Platform of the Alberta Strategy for Patient Oriented Research’s Support for People and Patient-Oriented Research and Trials Unit and Alberta Health Services’ Addiction and Mental Health Strategic Clinical Network, along with partners in addictions and mental health, designed the Alberta Depression Research Priority Setting Project. The aim of the project was to survey patients, caregivers and clinicians/researchers in Alberta about what they considered to be the most important unanswered questions about depression.Methods: The project adapted the James Lind Alliance Priority Setting Partnership method into a 6-step process to gather and prioritize questions about depression posed by people with lived depression experience, which included patients, caregivers, clinicians and health care practitioners.Results: Implementation of the project, from initial data collection to final priority setting, took 10 months (August 2016 to June 2017). A total of 445 Albertans with lived experience of depression participated, ultimately identifying 11 priority depression research questions spanning the health continuum, life stages, and treatment and prevention opportunities.Interpretation: This project is a fundamental step that has the potential to positively influence depression research. Including the voices of Albertans with lived experience will create advantages for depression research for Albertans, researchers and research funders, and for patient engagement in the research enterprise overall.