Online open survey to gather potential priorities with a convenience sample of people with lived experience with pediatric chronic pain, family members and health care providers.

Survey data were collected and managed with REDCap electronic data-capture tools (Vanderbilt University) hosted at The Hospital for Sick Children. Two to 6 questions per page were presented over 4 survey pages, with prompts to complete required questions and review before submission. Survey was open for 12 wk. Submissions were screened for duplicate entries based on priority responses; none were found.

Survey questions codeveloped by project lead (K.A.B.) and patient and parent partners (K.D., C.O., M.A.D., K.N.), and reviewed by researcher/clinician steering committee members (K.B., J.C., P.F., C.L., M.N., P.P., J.S.).

Script for promotional video cowritten by project lead (K.A.B.) with patient and parent partners (K.D., C.O., M.D., K.N.).

Survey promotional materials reviewed and disseminated by all steering committee members. Patient partners (K.D., C.O.) involved in coauthoring newsletter contributions to patient partner and health care organizations.

Processing responses was conducted by project lead (K.A.B.) and then reviewed by at least 1 patient/parent partner (K.D., C.O., M.A.D., K.N., D.P.) and at least 1 clinician or researcher steering committee member (K.B., J.C., P.F., C.L., M.N., P.P., J.S.) for relevance, accuracy, clarity of wording and duplication.

French-language submissions were reviewed by bilingual steering committee members (C.L., P.P.) and turned into or combined with English-language research questions, as appropriate.

Voluntary online closed survey to identify 25–30 most important research priorities with an invited national sample of people with lived experienced with pediatric chronic pain, family members and health care providers.

Survey data were collected and managed as in phase 1. Nine to 15 questions per page were presented over 6 survey pages (including informed consent page), with prompts to complete required questions and review before submission. Six survey iterations were developed presenting research questions in random order. Respondents were given unique survey link to avoid duplicate entries. Survey was open for 3 wk, with 2 email reminders.

Patient and parent partners (K.D., C.O., M.A.D., K.N., D.P.) selected the Likert scale process for ranking the importance of each research questions.

Patient and parent partners (K.D., C.O., M.D., K.N., D.P.) pilot tested interim prioritization survey.

Patient and parent partners (K.D., C.O., M.A.D., K.N., D.P.) identified important areas of representation to ensure diversity of workshop participants (e.g., age, sex, chronic pain experience, geography, family member relationship, health care setting, discipline of health care providers) with input from researchers/clinicians (K.A.B., K.B., J.C., P.F., C.L., M.N., P.P., J.S.).

Patient and parent partners (K.D., C.O., M.A.D., K.N., D.P.) participated in workshop.

Patient and parent partners (K.D., C.O., M.A.D., K.N., D.P.), and researcher/clinician steering committee members (K.B., J.C., P.F., C.L., M.N., P.P., J.S.) involved in codissemination of project findings with project lead (K.A.B.) in peer-reviewed publications, professional and training conferences, and promotional video. (45)