Participant demographic characteristics for phases of priority-setting process
| Characteristic | Phase; no. (%) of participants* | ||
|---|---|---|---|
| 1: national survey n = 215 | 3: interim prioritization n = 57 | 4: priority-setting workshop n = 20 | |
| Stakeholder group | |||
| Child/adolescent < 18 yr with chronic pain | 33 (15.3) | 6 (10) | 3 (15) |
| Adult ≥ 18 yr with chronic pain before age 18 | 53 (24.6) | 13 (23) | 3 (15) |
| Parent/caregiver | 50 (23.3) | 16 (28) | 5 (25) |
| Other family member (e.g., sibling) | 6 (2.8) | 1 (2) | 1 (5) |
| Physician | 32 (14.9) | 2 (4) | 1 (5) |
| Nurse | 13 (6.0) | 5 (9) | 3 (15) |
| Psychologist | 8 (3.7) | 6 (10) | 2 (10) |
| Physiotherapist | 9 (4.2) | 4 (7) | 2 (10) |
| Social worker | 3 (1.4) | 2 (4) | 0 (0) |
| Occupational therapist | 2 (0.9) | 2 (4) | 0 (0) |
| Other health care provider in clinical practice | 6 (2.8) | 0 (0) | 0 (0) |
| Province/territory | |||
| British Columbia | 20 (9.3) | 5 (9) | 2 (10) |
| Alberta | 18 (8.4) | 17 (30) | 2 (10) |
| Saskatchewan | 19 (8.8) | 5 (9) | 3 (15) |
| Ontario | 102 (47.4) | 16 (28) | 6 (30) |
| Quebec | 26 (12.1) | 4 (7) | 3 (15) |
| New Brunswick | 2 (0.9) | 1 (2) | 0 (0) |
| Nova Scotia | 16 (7.4) | 7 (12) | 3 (15) |
| Prince Edward Island | 1 (0.5) | 0 (0) | 0 (0) |
| Newfoundland and Labrador | 10 (4.6) | 0 (0) | 0 (0) |
| Yukon Territory, Northwest Territories, Nunavut | 1 (0.5) | 2 (4) | 1 (5) |
| Primary language | |||
| English | 193 (89.8) | 53 (93) | 18 (90) |
| French | 22 (10.2) | 4 (7) | 2 (10) |
| Residence | |||
| Urban | 179 (83.2) | 51 (89) | 17 (85) |
| Rural | 36 (16.7) | 6 (10) | 3 (15) |
| Age, yr | |||
| Mean ± SD | 36.23 ± 14.94 | 36.58 ± 15.06 | 34.70 ± 15.20 |
| Range | 14–73 | 13–71 | 11–61 |
| Sex | |||
| Male | 38 (17.7) | 11 (19) | 2 (10) |
| Female | 171 (79.5) | 46 (81) | 18 (90) |
| Prefer not to say | 4 (1.9) | 0 (0) | 0 (0) |
| Prefer to self-describe | 2 (0.9) | 0 (0) | 0 (0) |
| Ethnicity | |||
| White | 187 (87.0) | 47 (82) | 12 (60) |
| Black | 1 (0.5) | 2 (4) | 0 (0) |
| Asian/South Asian | 10 (4.6) | 4 (7) | 1 (5) |
| Arab | 2 (0.9) | 1 (2) | 2 (10) |
| Indigenous | 4 (1.9) | 1 (2) | 3 (15) |
| Mixed/multiple ethnic groups | 5 (2.3) | 1 (2) | 2 (10) |
| Prefer to self-describe | 6 (2.8) | 1 (2) | 0 (0) |
| For patients/family members only | n = 138 | n = 36 | n = 12 |
| Location of primary chronic pain care | |||
| Specialty pediatric chronic pain clinic | 14 (10.1) | 18 (50) | 3 (25) |
| Pediatric outpatient clinic | 41 (29.7) | 6 (17) | 4 (33) |
| Family doctor/pediatrician | 16 (11.6) | 5 (14) | 5 (42) |
| Other (e.g., adult pain clinic, physiotherapy) | 26 (18.8) | 6 (17) | 0 (0) |
| None | 41 (29.7) | 1 (3) | 0 (0) |
| Years you (or family member) have lived with chronic pain | |||
| Mean ± SD | 10.48 ± 11.67 | 6.44 ± 3.82 | 8.92 ± 2.54 |
| Range | 1–55 | 1–13 | 3–11 |
| For health care providers/clinicians only | n = 77 | n = 21 | n = 8 |
| Years you have worked in pediatric chronic pain care | |||
| Mean ± SD | 12.75 ± 9.96 | 8.95 ± 7.61 | 7.44 ± 4.94 |
| Range | 1–40 | 2–29 | 3–15 |
| Location of primary chronic pain practice | |||
| Specialty pediatric chronic pain program | 20 (26) | 14 (67) | 6 (75) |
| Pediatric outpatient clinic | 22 (29) | 5 (24) | 1 (12) |
| Other (e.g., school, inpatient, emergency) | 35 (45) | 2 (10) | 1 (12) |
Note: SD = standard deviation.
↵* Except where noted otherwise.