METHODS: We conducted 25 semistructured interviews with parents of CMC and HCPs of
various disciplines from a tertiary pediatric hospital. Interview guide questions were focused …

Purpose Children with cancer often receive high-intensity (HI) medical care at the end-of-life
(EOL). Previous studies have been limited to single centers or lacked detailed clinical data. …

BACKGROUND AND OBJECTIVE: Forgoing artificial nutrition and hydration (FANH) in
children at the end of life (EOL) is a medically, legally, and ethically acceptable practice under …

Over the last 30 to 40 years, improvements in technology, as well as changing clinical
practice regarding the appropriateness of long-term ventilation in patients with “non-curable” …

Purpose The impact of specialized pediatric palliative care (SPPC) teams on patterns of end-of-life
care is unknown. We sought to determine (1) which children with cancer access …

PURPOSE Evidence suggests that adolescents and young adults (AYAs) with cancer (defined
as age 15-39 years) receive high-intensity (HI) medical care at the end-of-life (EOL). …

Background: Pediatric palliative care focuses on comprehensive symptom management and
enhancing quality of life for children with life-threatening conditions and their families. Our …

Background For children with cancer in palliative care, pain and worry are common and
frequently under-managed, which negatively impacts quality of life (QOL). Massage therapy (MT…

Importance Advance care planning (ACP) is the process of discussing values and preferences
for care to help inform medical decision-making. Children with medical complexity (CMC) …

Background: Health care providers (HCPs) require ongoing training and mentorship to fully
appreciate the palliative care needs of children. Project ECHO ® (Extension for Community …