Importance Patient-reported outcome (PRO) data from clinical trials can provide valuable
evidence to inform shared decision making, labeling claims, clinical guidelines, and health …

Despite enthusiasm for patient-centered care, the practice of patient-centered care is proving
challenging. Further, it is curious that the literature about this subject does not explicitly …

Patient-reported outcomes (PROs) are used in clinical trials to provide valuable evidence on
the impact of disease and treatment on patients’ symptoms, function and quality of life. High-…

Introduction Psychosocial and rehabilitation interventions are increasingly used to attenuate
disability and improve health-related quality of life (HRQL) in chronic diseases, but are …

From the experience of the self under conditions of disability we learn that the self is embodied,
interdependent, and interconnected. In other words, it is necessarily experienced and …

Background: Throughout the course of their illness, people with amyotrophic lateral sclerosis
(ALS) must make many treatment decisions; however, none has such a significant impact …

Importance Patient-reported outcomes (PROs) can inform health care decisions, regulatory
decisions, and health care policy. They also can be used for audit/benchmarking and …

Reed, GM, Drescher, JRB, Krueger E., Atalla SD, Cochran MB, First PT, Cohen-Kettenis I.,
Arango-de Montis SJ, Parish S., Cottler P., et al. 2016. Disorders related to sexuality and …

In this article, the authors challenge professionals to re-examine assumptions about basic
concepts and their implications in supporting adults with intellectual and developmental …

Introduction No studies have reported mental health symptom comparisons prior to and
during COVID-19 in vulnerable medical populations. Objective To compare anxiety and …