OBJECTIVE: To describe demographic and clinical characteristics and outcomes of patients
who received hospital-based pediatric palliative care (PPC) consultations. DESIGN, …

When parents first meet their child, they take on the entwined joys and burdens of caring for
another person. Providing care for their child becomes the basic expectation, during health …

This retrospective study analysed data for 703 children who died from 2000 to 2006 to examine
where children with a broad range of progressive, life-limiting illnesses actually die when …

Background: Pediatric palliative care focuses on comprehensive symptom management and
enhancing quality of life for children with life-threatening conditions and their families. Our …

In this 3-year prospective grounded theory study in three pediatric settings, we aimed to
develop a conceptualization of best practice health care providers (BPHCPs) in interaction with …

A substantial number of children cared for by pediatric palliative care physicians have
progressive non-malignant conditions. Some elements of their care overlap with care for children …

OBJECTIVES: To increase awareness of the topic of paediatric palliative care among practicing
physicians in Canada by exploring the impact of a child’s neurological or rare genetic life…

Background Children with progressive, non-curable genetic, metabolic, or neurological
conditions require specialised care to enhance their quality of life. Prevention and relief of …

Background Pediatric palliative care is a relatively new and evolving field, and the cost of
pediatric palliative care programs is unclear. We conducted a systematic review to compare …

Genome‐wide sequencing (GWS) is increasingly being used in neonatal intensive care
units. While studies have explored its clinical utility, little is known about parental experiences …