Area; measure | No. (%) of respondents n = 151 | |
---|---|---|
Most important* | Want additional information about† | |
Data access controls | ||
Must apply for data access | 94 (62.2) | 38 (25.2) |
Approval from research ethics board | 89 (58.9) | 70 (46.4) |
Approval from data stewards | 77 (51.0) | 101 (66.9) |
Access data for limited time | 31 (20.5) | 45 (29.8) |
Privacy and security controls | ||
Data are deidentified | 135 (89.4) | – |
Privacy training and confidentiality agreement | 87 (57.6) | – |
Review of research outputs | 66 (43.7) | – |
Funding agencies cannot access data | 54 (35.8) | – |
No access outside Canada | 53 (35.1) | – |