Evaluation of patient engagement after the priority-setting workshop*
Item | Mean score ± SD (range)† |
---|---|
Communications and supports for participation | |
I had a clear understanding of the purpose of the #PartneringForPain research-priority–setting workshop | 4.53 ± 0.51 (4–5) |
The supports I needed to participate were available (e.g., travel, child care) | 4.68 ± 0.58 (3–5) |
I had enough information to contribute to the topic being discussed | 4.53 ± 0.61 (4–5) |
Views and perspectives | |
I was able to express my views freely | 4.84 ± 0.37 (4–5) |
I feel that my views were heard | 4.74 ± 0.56 (3–5) |
A wide range of views on the topics discussed was discussed | 4.79 ± 0.42 (4–5) |
The individuals participating in the #PartneringForPain research-priority–setting workshop represented a broad range of perspectives on the topic | 4.79 ± 0.42 (4–5) |
I feel confident that the final list of top research priorities identified during the #PartneringForPain workshop reflects what matters most to people with lived experienced with chronic pain as a child or teen, their family members and treating clinicians | 4.53 ± 0.61 (3–5) |
I feel that my views are reflected in the final list of top research priorities identified during the workshop | 4.53 ± 0.61 (3–5) |
Impacts and influence of engagement initiative | |
I think the #PartneringForPain research-priority–setting workshop achieved its objective | 4.74 ± 0.45 (4–5) |
I am confident the input provided through this initiative will be used by the #PartneringForPain project team | 4.79 ± 0.42 (4–5) |
I think the input provided through this activity will make a difference to the work of the #PartneringForPain project | 4.74 ± 0.45 (4–5) |
I am confident the input provided through this activity will direct future research about chronic pain in children and teens in Canada | 4.47 ± 0.51 (4–5) |
Final thoughts | |
As a result of my participation in the #PartneringForPain workshop, I am better informed about what questions people with lived experience with chronic pain as a child or teen, their family members and treating clinicians have about treating pediatric chronic pain in Canada | 4.63 ± 0.50 (4–5) |
Overall, I was satisfied with this engagement initiative | 4.74 ± 0.45 (4–5) |
This engagement initiative was a good use of my time | 4.68 ± 0.48 (4–5) |
Open-ended questions | |
What else would you like us to know about how your participation in the #PartneringForPain workshop was supported? |
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What else would you like us to know about how you were able to share your views? |
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What else would you like us to know about the influence you think the #PartneringForPain workshop will have? |
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What were the strengths of the #PartneringForPain workshop? |
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What could be improved about the #PartneringForPain workshop? |
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What else would you like us to know about your experience with the #PartneringForPain workshop? |
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